Stories of progress, inspiration, and information in overcoming osteosarcoma.

Tyler Stowe Robinson with his family

Living a Full Life with Terminal Osteosarcoma

From prom to nursing school to parties with his friends, Tyler embraced life throughout his osteosarcoma diagnosis and treatment, creating lasting memories for his loved ones.

Tyler Stowe Robinson filled his life with friendship and love right up until his final days. Despite facing a leg amputation, multiple surgeries, and treatments in his battle with osteosarcoma, he attended prom, worked part time at Party City, obtained his driver’s license, hung out with friends, studied for a nursing degree, and even dated. Knowing his time would likely be short, he squeezed in every bit of life he could.

His Family Suspected a Football Injury, but it was Cancer

Tyler was playing a lot of football the summer before his sophomore year of high school. His leg had been bothering him for a couple of weeks, but his family chalked it up to the hours he was spending on the field each day.

That summer, Tyler and his dad, Mike Robinson, were on vacation in New Hampshire with Tyler’s grandmother. His grandmother thought Tyler’s leg looked swollen and suggested they go to urgent care. “I remember thinking, ‘She is blowing this out of proportion,’” Mike says.

They agreed to have it checked and X-rayed. When they got the results, they heard words they never expected: “This looks like bone cancer.”

“It was like being hit in the head with an anvil,” Mike says. “You go from thinking about where you are going to grab a burger to driving immediately to Boston Children’s. Your world is upside down. I remember thinking, ‘Am I in a nightmare right now?’”

Doctors Found Cancer in his Leg and Lungs

An MRI and other imaging tests showed Tyler had osteosarcoma in his leg that had metastasized to both of his lungs. To treat it, they started the amputation process right away. “That was the right decision, but it was really hard,” Mike says.

Tyler and his family tried a range of treatments over three years. “We went through two lung surgeries, three knee surgeries, countless rounds of chemo, a clinical trial, and radiation,” says Amie Stowe, Tyler’s mom.

Still, for most of Tyler’s junior and senior years of high school, he took a maintenance drug, and his life was relatively normal. “He went to prom, he graduated, he partied,” Amie says. “He never let his amputation stop him even when there were issues with the prosthetic and the surgery site. He still used his crutches and tried riding a bike, kicked a soccer ball around, bounced on the trampoline, and did short hikes with the family all with one leg.”

Amie and Mike say they were more liberal with Tyler than they might have been, given what he was going through. “We wanted to let him get in everything he could get in,” Amy says. “He went on dates. He took gummies. He had a beer.”

Final Days Surrounded by Love

Ultimately, a tumor in Tyler’s lungs was inoperable, because it was intertwined with blood vessels. There was no further treatment available. Tyler, 18, was only expected to live days longer. “Tyler barely cried. He accepted it. He knew he was going to die for three years,” Mike says. “He was worried about his friends and family, not about himself.”

Tyler’s family filled his final days with joy. As his time drew to an end, he told his friends and family members what he wanted for them in their lives. “He left us with the things he treasured most and the happiness he wanted to see us have,” Amie says.

He gave his shirts and sweatshirts to his friends and nephews, and he paid for his friends and his family members to get tattoos together after he passed away. They tattooed their left legs, the leg that Tyler had amputated, with his initials, his birthday, and the day he died. “I passed out getting the tattoo. I am sure he would have gotten a real laugh out of that,” Mike says.

“There are good drugs and smart people working on treatments. I want other families to have hope that, even though Tyler passed away, their futures are not written out yet." —Mike Stowe

Tyler’s Legacy Provides Hope for Other Families

Tyler was able to complete one semester at Regis College, where he was studying nursing, inspired by the nurses who had cared for him. “He had to leave campus almost every single day to go to radiation, but he did really well. He knew he was not going to be able to go back after the first semester, but he was happy he got to go. He wanted the experience,” Amie says.

Tyler’s grandmother had saved money for his college education, and she gave half of the money to his younger sister, Joyce, and the other half to The Osteosarcoma Institute (OSI).

OSI Connect helped identify clinical trials that might be appropriate for Tyler, so his family did not have to spend time on that research. “Thank God for places like The Osteosarcoma Institute,” Mike says.

Mike offers words of encouragement to other families facing osteosarcoma. “There are good drugs and smart people working on treatments. I want other families to have hope that, even though Tyler passed away, their futures are not written out yet,” he says.

Tyler Stowe Robinson in a blue graduation cap and robe Headshot of Tyler Stowe Robinson

Sign Up to Receive The Frontline

Stay informed as we work to identify new treatments for osteosarcoma.

We never sell or share your information.

Contact Information

More On This Topic

No results found.

Your donation provides immediate and long-term support to osteosarcoma patients.