Effective Date: June 21, 202
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Your privacy is important to the Osteosarcoma Institute and all other affiliated entities (“OSI” or “we”), and we know that you care about how your personal information is used and shared.
This policy applies to information we collect:
• On our Sites: osinst.org and all related subdomains; and
• In email, text and other electronic messages between you and the Site.
This policy does not apply to information collected by:
• OSI offline or through any other means; including on any other website operated by any third party.
• Information you may provide OSI under a separate form of consent, such as consent in connection with OSI’s Share My Story or OSI Connect programs; or any third party, including through any application or content that may link to or be accessible from or on our Site.
Collection of Information
Cookies and Tracking Technologies
When your computer or mobile device contacts our web servers (for example, when you visit this Site, or view an HTML e-mail), our web servers automatically collect usage information (“Usage Information”). Such usage information includes information about how our visitors use and navigate our Site. It can include aggregate information such as the number and frequency of visitors to each page and the length of their stays, browser type and referrer data that identifies the web page visited prior and subsequent to visiting our Site. We also may determine the applicable technology available in order to serve you the most appropriate version of the Site, a web page, e-mail or similar service.
OSI does not engage in the collection of Personal Information over time and across third-party websites, and we do not permit third parties to gather information passively on our Sites for behavioral advertising purposes.
How We Use the Information We Collect
OSI uses Usage Information to analyze and improve this Site and to provide you with a more fulfilling and relevant experience. OSI shall own non-personal Usage Information and may maintain copies of such as part of its records indefinitely.
The Site may offer access to OSI Connect for patients who have been diagnosed with osteosarcoma or suffered a relapse after initial treatment. This resource is designed to help patients, families and caregivers find answers to their questions from experienced, knowledgeable osteosarcoma experts about all aspects of the disease, including available treatments and possible side effects, as well as helpful advice for getting the most out of your visits with your treating physician.
A member of the OSI staff will answer your call or email and, on a confidential basis, gather your information and questions for review by one of the sarcoma experts who serves on our board. After this review, we will arrange a phone call between you and the expert.
OSI Connect provides general guidance about the treatment of osteosarcoma. We can provide referrals for care if you wish. We do not provide medical care or specific medical advice.
The information that you provide through OSI Connect is voluntary. If you choose to provide personal information or personal health information, the information you provide will only be used by OSI to provide you with resources that you request through OSI Connect and will not be shared with any third party other than third party analytics firms whose use is limited to providing OSI with data analysis. The analyzed data may be shared with third parties after it has been anonymized by or on behalf of OSI.
Sharing Your Information
• To contractors, service providers and other third parties we use to support OSI and who are bound by contractual obligations to keep Personal Information confidential and use it only for the purposes for which we disclose it to them. Examples of these services include: (a) content providers and technology plug-ins (including third party video and other media players); (b) product customization, (c) marketing and promotional material distribution, (d) website evaluation, (e) data collection, storage, management, analysis and, where applicable, cleansing, and (f) any other services designed to assist us in achieving our mission. These third parties may have access to this Site’s user information, including Personal Identifiable Information, to the extent it is needed to perform their duties and functions.
• To a successor in the event of a merger, divestiture, restructuring, reorganization, dissolution, or other sale or transfer of some or all of OSI’s assets, whether as a going concern or as part of bankruptcy, liquidation, or similar proceeding, in which Personal Information held by OSI about our Site users, donors, or clients is among the assets transferred.
• To fulfill the purpose for which you provide it or otherwise with your consent.
• For any other purpose disclosed by us when you provide the information.
• To our affiliates.
• To comply with any court order, law, or legal process, including to respond to any government or regulatory request.
• If we believe disclosure is necessary or appropriate to protect the rights, property, or safety of OSI, our grantees, or others.
We may disclose aggregated, non-personal Usage Information about our users without restriction.
Opt-Out of the Access to Personal Information
If you do not wish to have your Personal Information used by OSI as noted above, please notify OSI directly at email@example.com. Notwithstanding the foregoing, OSI may be required to use your Personal Information to complete transactions requested by you or to cooperate with government officials or parties in litigation under process of law, or as otherwise required by law and/or to protect against legal liability.
Please note that the limitations on OSI’s use of Personal Information and Usage Information as set forth above do not apply in the event of a transfer of OSI’s assets, and Usage Information and Personal Information owned or in the possession of OSI may be transferred, distributed, or sold as part of OSI or its assets, except as prohibited by law. In addition, we may not accommodate a request to change information if we believe the change would violate any law or legal requirement or cause the information to be incorrect or if the identity of the requesting party cannot be verified.
Accessing and Correcting Your Information
Site users may request access to review or modify their Personal Information maintained by OSI by contacting us at firstname.lastname@example.org. We may not accommodate a request to change information if we believe the change would violate any law or legal requirement or cause the information to be incorrect or if the identity of the requesting party cannot be verified.
OSI has implemented security measures to help protect against the risk of loss, misuse, and alteration of any Usage Information or Personal Information under OSI’s control. Nevertheless, such security measures may not prevent all loss, misuse, or alteration of information on the Site, and OSI is not responsible for any damages or liabilities relating to any such security failures. By using this Site, you understand that there is a risk that data and communications, including email and other electronic communications, may be accessed by unauthorized third parties when communicated over the Internet. The foregoing does not affect any liability that cannot be excluded or limited under applicable law.
Your California Privacy Rights
Under California law, a California resident with whom OSI has an established relationship has the right to request certain information with respect to the types of personal information OSI has shared with third parties for their direct marketing purposes (if any), and the identities of those third parties, within the immediately preceding calendar year, subject to certain exceptions. In response to a written request, OSI is allowed to provide a cost-free means to opt-out of such sharing.
Since OSI does not provide your Personal Information to third parties for their direct marketing purposes, it is not necessary for us to establish this procedure; however, if you do not want OSI to use your Personal Information to provide information about our programs, please follow the cost-free opt-out procedures in this policy.
Site Location; Transfer of Information to the United States
Information of Children
Our Site is not directed to children under the age of 13 years. We will not request personally identifiable information from anyone whom we know to be under the age of 13. By using our Site, you represent and warrant that you are at least 13 years old. If we become aware that a customer is under the age of 13 and has registered without prior verifiable parental consent, we will remove his or her Personal Information.
Links to Third-Party Websites
Nevada Privacy Rights
Nevada residents may opt out of the sale of their covered information, as those terms are defined in Nevada law, by submitting such request to our designated email address: email@example.com; however, please note that we do not sell your covered information as defined by Nevada law.
Last Updated: June 21, 2022