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Stories of progress, inspiration, and information in overcoming osteosarcoma.

Photo of Grace smiling and wearing a yellow dress.

Amazing Grace

After a years-long battle with osteosarcoma, Grace Messinger’s legacy lives on in the music and love she left behind.

In 2021, just as schools were reopening after the COVID-19 pandemic, 12-year-old Grace Messinger was still a remote learner due to her asthma, but that didn’t keep her from taking part in her regular classes.

One day, as Grace was holding a plank exercise during a remote physical education class, she felt something snap in her left shoulder. Believing it was a minor sprain from months of inactivity, Grace and her mom, Carrie, iced it and watched for bruising or swelling. When the pain still hadn’t subsided a few days later, they went to a local orthopedic clinic to get it checked out, and it was there that doctors discovered a large osteosarcoma lesion on Grace’s left shoulder and upper arm.

Grace received chemo, then limb salvage surgery, followed by more chemo, but even in the face of near-constant adversity, Grace remained upbeat, Carrie says.

“A child who loved sunflowers and the color yellow, Grace set the pace for her treatment and chose to fight from a place of positive energy,” she says.

Finding the Good

The first year of treatment was extremely difficult, compounded by the fact that it coincided with the COVID-19 pandemic. Still, Grace had decided early on she wasn’t going to fight “depresso espresso,” as she called it.

“Grace just looked up at me one morning and said, ‘I can’t do this. I can’t fight cancer like this. I want us to fight, but I want us to do it from a place where we have fun. We need to be positive and laugh and smile because I can’t fight like this,’” Carrie says. “And I was like, ‘If that’s your decision, then that’s what we’ll do, because this is your fight. I’m just along for the ride.’”

When Grace needed to be hospitalized — which was time and again that first year — Carrie did her best to make it as enjoyable as possible, and even on the hardest of days, Carrie and Grace found something to be grateful for.

“We always tried to find one positive thing each day to celebrate,” Carrie says. “And there were some days where that was a challenge, but we still were able to make that part of our daily routine.”

Carrie says she can’t help but think that Grace’s mindset throughout her osteosarcoma treatment was a big part of surviving as long as she did.

Grace finished treatment right before Thanksgiving 2021, but just two months later, doctors found new metastasis in Grace’s lungs, and she received thoracic lung surgery in 2022, followed by more chemo. A few days after finishing treatment, Grace spiked a 104-degree fever and was found to have sepsis with pneumonia on top of being neutropenic, so she was rushed to the ICU and placed on a ventilator.

The experience was profound for Carrie. She knew that’s not how Grace wanted to die, and she prayed it wouldn’t be.

“[Grace] had been very adamant, this is not what she wanted, but because she was neutropenic and had sepsis and pneumonia at the same time, there really was no other choice to save her life,” Carrie says. “All I could do was ask God, please don’t let her die this way.”

Thankfully, Grace pulled through.

In early 2023, more metastasis was found in Grace’s lungs, and a year after her last thoracic procedure, Grace had a second surgery to remove a lower lobe of her lung. Only weeks after surgery, scans showed that the cancer had spread yet again, leading Grace to try a new drug, vactosertib, as well as radiation and cryoablation in an effort to slow the cancer’s progression and buy more time. By July 2023, Carrie and Grace learned that the cancer was spreading in Grace’s spine, and she had a choice to make. Grace decided to stop the treatment.

“We’d always said Grace would have the final say over her care, and so when she decided to stop, that was her decision,” says Carrie, who quit working in 2023 to focus on caring for Grace. “The reality was that she could either take chemo and be sick and die in a hospital, or we could give her the best moments of her life and let her live them out on her terms.”

After years in the hospital, Grace craved only being home with her mom and service dog, Snickerdoodle.

“Her love language was quality time, so when I quit working to spend those months with her, she was on cloud nine,” Carrie says.

The two also welcomed hospice into their lives early to manage Grace’s pain so she could really live big in her final months.

“Hospice is kind of a dirty word in our community because it says our kids are dying. But the reality is that she was going to die anyway, and by letting hospice come in early, she got to build a relationship with them. They became a second family to us,” Carrie says. “She was doing music therapy, massage therapy, she got to know her nurses very well. And that was really helpful for her, and it made it so much less weird. They also did such an amazing job of managing her pain so that she could really continue to live until the last moment.”

“We always tried to find one positive thing each day to celebrate,” Carrie says. “And there were some days where that was a challenge, but we still were able to make that part of our daily routine.”

A Summer of Yes

The summer before Grace passed away, Carrie let Grace lead the way when it came to their days. She planted a garden, saw movies in the theater for the first time in years, and visited the pumpkin patch with her best friends.

“We just did whatever Grace wanted to do,” Carrie says. “She taught herself to crochet. We went to a dim sum restaurant, and she ordered one of everything on the menu. We had dessert before dinner. She had an entire month where all she wanted to do was pick berries and make jam. So that’s what we did.”

Making jam was more than a fun pastime for Grace.

“The reason she wanted to do that was twofold,” Carrie says. “First, it was fun. She enjoyed it, but she also wanted to leave behind something for all of us to enjoy the rest of the year after she had passed away.”

Grace left longer-lasting reminders, too, including writing and recording a song called “Realization.” Carrie uploaded it to YouTube to raise awareness for Childhood Cancer Awareness Month and the Count Me In project, an initiative to collect tumor tissue samples and patient data for research. The other reminders were just for her mom.

“She left me with gifts for my birthday, Mother’s Day, Christmas, Valentine’s Day, just-because-day gifts — for the next six years,” Carrie says. “She preloaded a DoorDash order because she was worried that I wouldn’t eat after she passed away. She left me a hundred handwritten notes that say things like, ‘I love you.’ ‘You may not know it, but I’m with you right now.’ ‘I’m giving you a hug from heaven today.’ They make me feel so loved, but they’re hard at the same time.”

Grace was with her beloved mom and dog when she passed away on September 27, 2023, a week after her 15th birthday.

“I’m thankful every day that we did what we did,” Carrie says. “I learned from her that life is a gift, and I will always be grateful for that.”

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